OUR HAPPY BOY IS BACK!! What a little guy, smiling to everyone on the unit. It is so much fun. He is sleeping fairly well in the nights, napping is still tough but it is happening.
FEEDS: I really can't believe how well it is going. We are at a two hour feed frequency, one hour to drip in 75m of formula, and then an hour break. There is no sense that Noah is uncomfortable, he hasn't retched once and the best part - no barfs! He is leaking a bit of formula out of his stoma (the G-tube site) but we are keeping an eye on it and just changing the gauze regularly.
Jared and I are so grateful for all the help. A special thanks to the staff and students at FFCA for the generous gifts they blessed us with yesterday. Noah even got to meet his cousin Maddie on Skype today - what a fun experience.
This is such a different experience than when Noah was first born and lived at the Children's. Perhaps it is mostly me...I feel like myself, visiting with nurses, cleaning staff, other parents. We ran into 2 other tube feed babies today and I was even able to encourage and give support to parents just starting the journey of tube feeding. Aside from Noah being mistaken for a girl (thanks to the pink pjs - good thing Oma gave him a nice blue bathrobe for his hospital stay) all is well and at peace with us!
Mom D. shared this verse with us today - I think it is a good way to sum up the weekend:
Psalm 28:6-7
Praise be to the LORD,
for he has heard my cry for mercy.
The LORD is my strength and my shield;
my heart trusts in him, and I am helped.
My heart leaps for joy
and I will give thanks to him in song.
What a blessing!
ReplyDeleteGlad to hear things are going so well! Hopefully, he will get to be "normal" someday and not need the tubes. I'm sure you're especially happy that the barfing seems to be at an end!
ReplyDeleteLove it all!!! Such a cutie you have....the video totally made my day!! :) Glad to hear things are going well.
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