Friday, December 11, 2009

Never did I imagine....

First, a huge thank you for the prayers, gifts, food, help.....with Noah in the hospital for almost 2 weeks now, we couldn't have done this without the support.  
Never did I imagine...

-our little boy would be admitted to Alberta Children's Hospital on November 29.  We were sent by the Public Health Nurse who came to our home upon our discharge from Rockyview.  She was concerned about his high respiratory rate and his very poor feedings.  Upon being in emergency, he had a lumbar tap, a catheter, blood work, chest films, nasal secretion test.....and so on.

-we've have met over 20 professionals for a variety of theories as to what is going on with Noah.  More tests and medications followed as the days unfolded - upper GI, reflux medication, etc.  

-I am pumping, bottle feeding, breast feeding, cup feeding, tube feeding- anything to help our little guy eat.  

-OT assess him daily for his "disorganized suck" and "chompy jaw."  He works WAY to hard eating and uses all his calories just trying to eat.  Its sad, hard and frustrating to watch and participate in.  

-be ever so grateful to be parents to our Noah Pieter.  He is an absolute sweet pea and so beautiful.  We will forgot all about this when its over.  Right now, its just hour by hour and praying he will get better soon.  

For now, 

Dar, Jared and Noah!

Tuesday, December 1, 2009

Turning 7

So today is Tuesday and one week ago, just after noon, Noah was born.  

We didn't expect he'd be in the hospital all but one of those days, and from what we've heard, he may be there a few more.

He really is doing a great job being a baby, but as you can see he's hopped up on oxygen.  We can't help but wonder if his use of this performance-enhancing drug is giving him an edge--I'm sure he would win hands-down at any Olympic event in the seven-days-and-under category.

The troube is, he clearly needs the oxygen, and everyone would love to know why.  He's endured the full set of tests, LP, bloodwork, and prettymuch every other testable fluid he could unwillingly donate, and now we wait for the results.  I find it an odd position to be in, not knowing what to hope for.  You see him there feeding well and being so adorable, and it doesn't seem like he should be there at all.  We can take a lot of comfort in the fact that he doesn't appear unwell at all.  And being in the children's hospital, you don't have to look far to see all the unplanned/unexpected things that can and do happen.  Should we hope one of the tests come back positive so he can be treated for something, or hope they're negative?  I'm not sure.  We have heard of very similar things happening to new babies though, so we're not too worried; we would just like be a bit selfish and have little Noah spend some more time at home.