The Netherlands wins the semi-final. I may have been one the few people at the hospital who cared about the World Cup yesterday, although I converted some nurses to cheer for the Dutch. I think my jersey helped, as did Noah's constant playing with a set of jingle bells during the game. It was a fun day and a good distraction from the stress of an on-again, off-again MRI.
Retching. We vent. He retches. He smiles. Repeat. No answers. Daily change in Drs., ideas, direction, medication. One foot in front of the other. Baby steps.
We may start feeding Noah continuously through the night. That is a workable plan for home (up every 4 hours just to fill the feeding bag). That means we will need a pump for home. It takes the pressure off the day feeds a bit, less volume, less time. He may start on some medication today to help with the retching. We are praying it works for Noah. It seems like taking steps back (he would eat 60% of his diet while sleeping and it takes us further away from oral eating), but now it is more about how we get home and help Noah get his nutrition. Baby steps.
Sitting in our hospital room. My son sleeping. His tube feed running. My hands raised. The following to songs playing. Simple surrender. I sense God's grace. I see glimpses of Him all around - in people, in creation, in our precious son. Baby steps.
Matt Redman's "The Father's Song"
Selah's "Wonderful, Merciful Saviour"
(thanks to Brenda, my singing partner, for introducing me to Selah. Their music has been such a blessing to me over the years).
Can you share a song or poem that has encouraged you in the past or present?? Email or facebook me!!