First, a huge thank you for the prayers, gifts, food, help.....with Noah in the hospital for almost 2 weeks now, we couldn't have done this without the support.
Never did I imagine...
-our little boy would be admitted to Alberta Children's Hospital on November 29. We were sent by the Public Health Nurse who came to our home upon our discharge from Rockyview. She was concerned about his high respiratory rate and his very poor feedings. Upon being in emergency, he had a lumbar tap, a catheter, blood work, chest films, nasal secretion test.....and so on.
-we've have met over 20 professionals for a variety of theories as to what is going on with Noah. More tests and medications followed as the days unfolded - upper GI, reflux medication, etc.
-I am pumping, bottle feeding, breast feeding, cup feeding, tube feeding- anything to help our little guy eat.
-OT assess him daily for his "disorganized suck" and "chompy jaw." He works WAY to hard eating and uses all his calories just trying to eat. Its sad, hard and frustrating to watch and participate in.
-be ever so grateful to be parents to our Noah Pieter. He is an absolute sweet pea and so beautiful. We will forgot all about this when its over. Right now, its just hour by hour and praying he will get better soon.