tag:blogger.com,1999:blog-2984735112774498751.post1263860025448274558..comments2023-03-01T01:25:58.815-07:00Comments on Tube Tales: T minus 3 weeksDykstrashttp://www.blogger.com/profile/00490149516314290697noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2984735112774498751.post-64373422489914993992011-03-13T19:39:42.050-06:002011-03-13T19:39:42.050-06:00Thanks for the idea.....we appreciate your thought...Thanks for the idea.....we appreciate your thought and time, especially since Noah is hypotonic in his joints. We'll check into it. Again, thank you.Dykstrashttps://www.blogger.com/profile/00490149516314290697noreply@blogger.comtag:blogger.com,1999:blog-2984735112774498751.post-10482754228641406272011-03-08T16:10:48.347-07:002011-03-08T16:10:48.347-07:00I came upon something interesting about "bott...I came upon something interesting about "bottom shuffling" as we are looking for a diagnosis for our little Mason. It seems highly likely he has a connective tissue disorder called Ehlers-Danlos Syndrome as at least part of his problems, and one of the symptoms is bottom-shuffling as a toddler. One of the highly diagnostic signs is if he has a missing "frenulum" in his bottom lip (the cord of tissue that attaches your lip to your gum). Or the same if he's missing it under his tongue. I doubt it relates to Noah but thought I would mention it just in case...and yes, it definitely impacts feeding/GI issues/reflux, the whole gammut of soft tissues, and when he is older, may cause joint hypermobility. If this is remotely the case your genetics person will want to check what kind to make sure his organs are not affected. A lot of the symptoms are not recognizable until a teen or older, but this frenulum sign is brand new they've noticed, and is helping diagnose newborns and small kiddos. Just thought I'd mention it. Mason's mommyPudgy Pencilshttps://www.blogger.com/profile/15760418858514161626noreply@blogger.comtag:blogger.com,1999:blog-2984735112774498751.post-83795705851796312912011-03-02T22:23:11.680-07:002011-03-02T22:23:11.680-07:00My word Noah is such a cutie!My word Noah is such a cutie!Amandahttps://www.blogger.com/profile/12034010111497777011noreply@blogger.com